Pediatric Tuberous Sclerosis Clinic
About tuberous sclerosis
Tuberous sclerosis complex (TSC) is a genetic disease that affects approximately 1 in 6,000 individuals and causes formation of abnormal growths or tumors in different organs of the body, including the brain, eyes, kidneys, heart, lungs, and skin. Symptoms of TSC can vary depending on the organs involved. Neurological manifestations, such as seizures (epilepsy), intellectual disability, and autism, are often the most common and disabling symptoms of TSC.
About the Washington University Tuberous Sclerosis Clinic
The Washington University Tuberous Sclerosis Clinic at St. Louis Children’s Hospital is one of approximately 50 clinics in the U.S. dedicated specifically to the care of individuals with TSC and is part of the larger Washington University Tuberous Sclerosis Center, which also conducts basic and clinical research on TSC. The mission of the Tuberous Sclerosis Clinic is to provide multidisciplinary, comprehensive care of children and adults with tuberous sclerosis complex (TSC) and to promote research, education and awareness about the disease.
The TSC clinic is directed by Washington University pediatric neurologist Michael Wong, MD, PhD, who coordinates all parts of the clinic and specializes in evaluating and treating neurological manifestations of TSC, such as seizures, developmental problems, and autism.
Because TSC often affects multiple organs throughout the body, the clinic incorporates a multidisciplinary approach — collaborating with specialists in other Washington University specialty divisions, including cardiology, dermatology, genetics, nephrology, neurosurgery, oncology, ophthalmology, pulmonary, psychiatry, and urology.
The TSC clinic offers comprehensive services related to all aspects of care for TSC patients. This includes initial diagnostic evaluation, outpatient follow-up, inpatient care for urgent/emergent medical issues, radiographic tumor screening according to recommended guidelines, genetic testing and counseling, EEG/Video-EEG monitoring, management and treatment of all manifestations of TSC, and educational and social support related to TSC, in conjunction with the TS Alliance.
Washington University Tuberous Sclerosis Clinic
Michael Wong, MD, PhD, Director
For more information or to make an appointment:
Department of Neurology, Box 8111
Washington University School of Medicine
660 S. Euclid Avenue
St. Louis, MO 63110